News

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News

All news

13. 10. 2021
Czechia now has its own "orphan drugs" bill

The new legislation is valid as of January 2022.

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4. 10. 2021
International Plasma Awareness Week

When: 4 - 8. 10. 2021

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17. 9. 2021
Preparing for the new school year according to HAE Junior

Back to school can be a challenging time for some HAE juniors and their parents.

Read more
24. 8. 2021
Memsource supports HAE Junior's international activities

HAE Junior welcomes Memsource as a new partner.

Read more
6. 8. 2021
HAE Junior awarded the HAEro Games 2021 trophies!

HAE Junior held the second edition of HAEro Games in August 2021.

Read more
30. 6. 2021
New partnership with Počítače dětem to support HAE juniors

Education of HAE children is one of our priorities.

Read more
24. 6. 2021
First-aid thermosets

HAE Junior distributes first-aid thermosets.

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16. 5. 2021
"We have big dreams for HAE juniors" exhibition

HAE Junior drawing exhibition.

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24. 4. 2021
The Best Gift: Freedom

Regaining freedom.

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24. 3. 2021
Informational leaflets for practical situations

Informational leaflets for HAE patients & their families.

Read more
6. 3. 2021
"We often experience personal lockdown, irrespective of governmental decisions."

HAE Junior’s joins the Rare Diseases Day 2021 awareness campaign.

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14. 1. 2021
Psychological support for HAE patient families

Living with HAE can be burdensome both for the patients and their families.

Read more
10. 1. 2021
Life with HAE through a mother's eyes

Supporting the development of my children's talents has returned the joy of life to our whole family - in spite of HAE diagnosis and other obstacles in life.

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22. 10. 2020
Chronic absentee with poor grades

Patient story illustrating the burden of HAE in relation to education.

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10. 7. 2020
My painful adolescence with HAE

A patient testimonial about the experience of living with HAE as a teenager.

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4. 5. 2020
The very first HAE symptom brought me to the operating table. Unnecessarily.

A patient story describing how the very first HAE symptom can lead to unnecessary surgery.

Read more
14. 3. 2020
Face to Face Against HAE

Growing up with HAE as experienced by one of the HAE juniors.

Read more

Stories and interviews

24. 4. 2021
The Best Gift: Freedom

Regaining freedom.

Read more
10. 1. 2021
Life with HAE through a mother's eyes

Supporting the development of my children's talents has returned the joy of life to our whole family - in spite of HAE diagnosis and other obstacles in life.

Read more
22. 10. 2020
Chronic absentee with poor grades

Patient story illustrating the burden of HAE in relation to education.

Read more
10. 7. 2020
My painful adolescence with HAE

A patient testimonial about the experience of living with HAE as a teenager.

Read more
4. 5. 2020
The very first HAE symptom brought me to the operating table. Unnecessarily.

A patient story describing how the very first HAE symptom can lead to unnecessary surgery.

Read more
14. 3. 2020
Face to Face Against HAE

Growing up with HAE as experienced by one of the HAE juniors.

Read more

News

13. 10. 2021
Czechia now has its own "orphan drugs" bill

The new legislation is valid as of January 2022.

Read more
17. 9. 2021
Preparing for the new school year according to HAE Junior

Back to school can be a challenging time for some HAE juniors and their parents.

Read more
24. 8. 2021
Memsource supports HAE Junior's international activities

HAE Junior welcomes Memsource as a new partner.

Read more
6. 8. 2021
HAE Junior awarded the HAEro Games 2021 trophies!

HAE Junior held the second edition of HAEro Games in August 2021.

Read more
30. 6. 2021
New partnership with Počítače dětem to support HAE juniors

Education of HAE children is one of our priorities.

Read more
24. 6. 2021
First-aid thermosets

HAE Junior distributes first-aid thermosets.

Read more
16. 5. 2021
"We have big dreams for HAE juniors" exhibition

HAE Junior drawing exhibition.

Read more
24. 3. 2021
Informational leaflets for practical situations

Informational leaflets for HAE patients & their families.

Read more
6. 3. 2021
"We often experience personal lockdown, irrespective of governmental decisions."

HAE Junior’s joins the Rare Diseases Day 2021 awareness campaign.

Read more
14. 1. 2021
Psychological support for HAE patient families

Living with HAE can be burdensome both for the patients and their families.

Read more

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info@haejunior.cz
704 007 717

Contact for journalists:
media@haejunior.cz

Media kit download
 

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