Rare Disease Day 2023
Intreview with Ms. Kateřina Slabá, head of the Promotion of Patients´ Rights Unit of the Ministry of Health
Interview with Tímea Piskáčková, NAPO Executive Director.
Interview with Tomáš Freiberger Ph.D., Lead Physician of the Genetic Laboratory, CKTCH, Brno
What is it like to live with HAE in Ukraine during times of war?
HAE juniors artwork raising awareness among Czech and European lawmakers.
Virtual workshop on 5.10.2022
The first symptom occurred was when I was two years old – it was in 1977.
ECRD 2022 conference to take place online from 27 June to 1 July 2022.
Finally I can live a normal, peaceful life.
Interview with Malena Vetterli, Board Member of ERN-RITA.
"Stronger than HAE" art exhibition as part of the Rare Disease Day 2022 campaign.
HAE Junior joins Giving Tuesday, which this year falls on November 30th, 2021.
Access to preventive treatment and education of patient families are the main patient priorities.
The new legislation is valid as of January 2022.
Back to school can be a challenging time for some HAE juniors and their parents.
HAE Junior welcomes Memsource as a new partner.
HAE Junior held the second edition of HAEro Games in August 2021.
Education of HAE children is one of our priorities.
Informational leaflets for HAE patients & their families.
HAE Junior’s joins the Rare Diseases Day 2021 awareness campaign.
Living with HAE can be burdensome both for the patients and their families.
Supporting the development of my children's talents has returned the joy of life to our whole family - in spite of HAE diagnosis and other obstacles in life.
Patient story illustrating the burden of HAE in relation to education.
A patient testimonial about the experience of living with HAE as a teenager.
A patient story describing how the very first HAE symptom can lead to unnecessary surgery.
HAE Junior joins Giving Tuesday, which this year falls on November 30th, 2021.
Intreview with Ms. Kateřina Slabá, head of the Promotion of Patients´ Rights Unit of the Ministry of Health
Interview with Tímea Piskáčková, NAPO Executive Director.
Interview with Tomáš Freiberger Ph.D., Lead Physician of the Genetic Laboratory, CKTCH, Brno
What is it like to live with HAE in Ukraine during times of war?
The first symptom occurred was when I was two years old – it was in 1977.
Finally I can live a normal, peaceful life.
Interview with Malena Vetterli, Board Member of ERN-RITA.
Supporting the development of my children's talents has returned the joy of life to our whole family - in spite of HAE diagnosis and other obstacles in life.
Patient story illustrating the burden of HAE in relation to education.
A patient testimonial about the experience of living with HAE as a teenager.
A patient story describing how the very first HAE symptom can lead to unnecessary surgery.
HAE juniors artwork raising awareness among Czech and European lawmakers.
Virtual workshop on 5.10.2022
ECRD 2022 conference to take place online from 27 June to 1 July 2022.
"Stronger than HAE" art exhibition as part of the Rare Disease Day 2022 campaign.
HAE Junior joins Giving Tuesday, which this year falls on November 30th, 2021.
Access to preventive treatment and education of patient families are the main patient priorities.
The new legislation is valid as of January 2022.
Back to school can be a challenging time for some HAE juniors and their parents.
HAE Junior welcomes Memsource as a new partner.
HAE Junior held the second edition of HAEro Games in August 2021.
Education of HAE children is one of our priorities.
Informational leaflets for HAE patients & their families.
HAE Junior’s joins the Rare Diseases Day 2021 awareness campaign.
Living with HAE can be burdensome both for the patients and their families.
You can send your financial donation also to our bank account 2001782429/2010.
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