What is it like to live with HAE in Ukraine during times of war?
How does such an extreme situation impact the life of HAE patient families?
To find out the answers, a mixed team of Ukrainian HAE experts & patient representatives (Bondarenko A., Zabrodska L., Formaniuk N.) undertook a patient survey earlier in 2022. The results were summarized in a poster that was presented as part of the Scientific track of the HAEi Global Leadership Workshop, which took place in Frankfurt, 6–9th Oct. 2022.
The survey aimed to assess “the impact of war on the fate of patients with HAE.” 40 Ukrainian HAE patients participated in the study by filling out an electronic questionnaire prepared by the research team. The key findings indicate that:
For more details, please access the full poster in English here.
HAE Junior team would like to tHAEnk the research team represented by Bondarenko A., Zabrodska L., Formaniuk N. for granting permission to share the research findings with our patient community.