Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

News

14. 5. 2024
Let's celebrate HAE Day 2024 together – actively and creatively!

On 16 May, the whole HAE community is celebrating hae day 🙂

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15. 4. 2024
The HAE educational camp, under the auspices of the Czech First Lady, highlighted the importance of siblings

The 2024 HAE Junior camp with the theme ‘Our Super Siblings’ took place between 12th - 14th of April in Prague.

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Stories and interviews

11. 6. 2024
"My HAE diagnosis uncovered the same rare disease in the whole male line of our family."

On HAE Day 2024, the Czech media published another HAE patient story

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28. 2. 2024
Finding the bright side of bad things that impact us

It wasn't until I moved to the Czech Republic that my life changed for the better.

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Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

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Will you support us?

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You can send your financial donation also to our bank account 2001782429/2010.

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