Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

On Saturday, May 16th, we once again celebrate the HAE Day

The 6th HAE Junior family camp, under the theme “Stronger Than HAE Through Sports,” took place from May 1 to 3, 2026.

New HAE Patient Journey available online on ERN RITA website.

My experience taking part in a clinical trial.