HAE Junior - Pacientská organizace
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Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

News

7. 11. 2023
HAE Junior presents 2024 awareness calendar!

Calendar with drawings made by Czech HAE children

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1. 11. 2023
Celebrate Giving Tuesday 2023 with HAE Junior

Giving Tuesday falls on Tuesday, November 28, 2023

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Stories and interviews

6. 12. 2023
HAE Junior patient organization celebrates its 4th anniversary

Interview with Camelia Isaic on the occasion of the fourth anniversary of the organization

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18. 9. 2023
About 40% of blood plasma used to make plasma-derived medicines for European patients is given by US donors

Interview about the importance and future of plasma derived medicines in the EU

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Events
Rare Disease Day 2024

Date: 29th February 2024

More info
Family educational camp with HAE Junior 2024

When: 12th – 14th April 2024

More info

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

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Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

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National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
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