Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

News

20. 6. 2022
HAE Junior to participate in ECRD 2022 poster session

ECRD 2022 conference to take place online from 27 June to 1 July 2022.

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7. 2. 2022
"Stronger than HAE" art exhibition aims to raise rare disease awareness

"Stronger than HAE" art exhibition as part of the Rare Disease Day 2022 campaign.

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Stories and interviews

20. 6. 2022
"A message to the young with HAE? Do not give in to the disease!"

The first symptom occurred was when I was two years old – it was in 1977.

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5. 5. 2022
I finally broke free from the disease, which was burdening me

Finally I can live a normal, peaceful life.

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Events

Renewed call for artwork submissions

Submission deadline: 7.08.2022

More info
HAE Junior – virtual patient meeting

When: 16th May from 17:30
Where: online

More info

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info@haejunior.cz
704 007 717

Contact for journalists:
media@haejunior.cz

Media kit download
 

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