HAE Junior - Pacientská organizace
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  • Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

Stories and interviews

12. 2. 2026
ERN RITA HAE Patient Journey Now Available Online

New HAE Patient Journey available online on ERN RITA website.

Read more
23. 10. 2025
"For the first time without injections: an experience that changed my life"

My experience taking part in a clinical trial.

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Events
International Plasma Awareness Week 2026

When: 5.–9. 10. 2026, online

More info
Call for artwork submissions 2026: Stronger than HAE through Sports

Online submissions open until December 12, 2026

More info

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

Contact us

Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

TakedaKalvistaLekarna.cz
Phrase
ČEZ
AmgenAstria

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubnapo
Národní zdravotnický informační portálERN RITAClinical Trials
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