• Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

News

22. 10. 2025
HAE Junior brings inspiration for 2026!

We are delighted to present the 2026 awareness calendar themed "My Inspiration".

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16. 10. 2025
“Embracing Opportunities” at HAEi EMEA conference in Italy

Patient advocacy in the Czech Republic was presented as a best practice example.

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Stories and interviews

23. 10. 2025
"For the first time without injections: an experience that changed my life"

My experience taking part in a clinical trial.

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25. 8. 2025
"Together we can ensure that patient needs are acknowledged and taken into account"

Interview with Camelia Isaic about the activities of the Plasma Protein Users Working Group (PUPP)

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Events

IPAW 2025: International Plasma Awareness Week

6 – 10th October 2025

More info
Family educational camp 2026

Date: May 1–3, 2026
Location: Medličky, Vysočina

More info

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

Contact us

Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

PharmingTakedaKalvistaLekarna.cz
Phrase
ČEZAmberplasma
AmgenAstria

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
napoNárodní zdravotnický informační portálERN RITA
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