• Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

Stories and interviews

19. 9. 2024
“The hurdles for patients who want to join a clinical trial in another country are huge”

Interview with Dr. Ingrid Klingmann on the EU Cross-border Clinical Trials Initiative (EU-X-CT).

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11. 6. 2024
"My HAE diagnosis uncovered the same rare disease in the whole male line of our family."

On HAE Day 2024, the Czech media published another HAE patient story

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Events

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

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Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

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National & international affiliations:

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