• Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

News

27. 2. 2025
HAE Junior Announces New AI Project

HAE Junior taps into the power of multilingual AI to map the European HAE pediatric patients needs

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14. 2. 2025
Rare Disease Day 2025: More Than You Can Imagine

HAE Junior supports Rare Disease Day

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Stories and interviews

19. 9. 2024
“The hurdles for patients who want to join a clinical trial in another country are huge”

Interview with Dr. Ingrid Klingmann on the EU Cross-border Clinical Trials Initiative (EU-X-CT).

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11. 6. 2024
"My HAE diagnosis uncovered the same rare disease in the whole male line of our family."

On HAE Day 2024, the Czech media published another HAE patient story

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Events

#active4HAE challenge goes purple!

When: 1st April 2025 – 31st May 2025

More info
14th C1-inhibitor Deficiency & Angioedema Workshop

When: 29 May - 1 June 2025
Where: Budapest, Hungary

More info

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

Contact us

Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

PharmingTakedaKalvistaLekarna.cz
Phrase
ČEZAmberplasma
Amgen

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
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