News

2. 1. 2025
Czech HAE patients can start using 'Euro key'

HAE Junior applied to include HAE diagnosis on the list of eligible conditions for Euro keys in the Czech Republic.

Read more
19. 11. 2024
HAE Junior marks its 5th anniversary with a special digital campaign

HAE Junior celebrates its 5th anniversary!

Read more

Stories and interviews

19. 9. 2024
“The hurdles for patients who want to join a clinical trial in another country are huge”

Interview with Dr. Ingrid Klingmann on the EU Cross-border Clinical Trials Initiative (EU-X-CT).

Read more
11. 6. 2024
"My HAE diagnosis uncovered the same rare disease in the whole male line of our family."

On HAE Day 2024, the Czech media published another HAE patient story

Read more

Events

Rare Disease Day 2025

When: 28.02.2025

More info
ACARE webinar "HAE in children"

When: 9.01.2025, 17:00
Where: online

More info

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

Contact us

Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

PharmingTakedaKalvistaLekarna.cz
Phrase
ČEZAmberplasma

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
napoNárodní zdravotnický informační portálERN RITA
Adalo Solutions s.r.o. © 2020 - 2025 | All rights reserved
Donate
here >>
Donate here >>