• Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

News

30. 5. 2025
Art exhibition by HAE juniors on display at scientific conference in Budapest

"My Inspiration" art exhibition at the 14th C1-Inhibitor Deficiency & Angioedema Workshop.

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13. 5. 2025
Did you know that 16 May is HAE Day?

On Friday, 16th of May, we celebrate again the HAE Day.

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Stories and interviews

13. 5. 2025
"Volunteering for a patient organisation can be a life-changing experience"

Interview with Maria Beekman-Kortekaas, Chairwoman of HAE The Netherlands.

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19. 9. 2024
“The hurdles for patients who want to join a clinical trial in another country are huge”

Interview with Dr. Ingrid Klingmann on the EU Cross-border Clinical Trials Initiative (EU-X-CT).

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Events

#active4HAE challenge goes purple!

When: 1st April 2025 – 31st May 2025

More info
14th C1-inhibitor Deficiency & Angioedema Workshop

When: 29 May - 1 June 2025
Where: Budapest, Hungary

More info

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

Contact us

Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

PharmingTakedaKalvistaLekarna.cz
Phrase
ČEZAmberplasma
AmgenAstria

National & international affiliations:

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