International conference ‘Towards a New European Policy Framework: building the future together for rare diseases’

21. 10. 2022

The international expert conference ‘Towards a New European Policy Framework: building the future together for rare diseases’ takes place in Prague on the 25th and 26th of October. The main objective is to discuss a common European policy for treatment of rare diseases. The programme includes speeches by ministry of health representatives as well as rare disease specialists and patient organizations from various EU countries. The event takes place under the Czech presidency of the EU Council.

The exhibition ‘Stronger than HAE’ will also be available on display, thus raising HAE awareness  at European level!

A stream of the event will be available online – check the official event website.

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info@haejunior.cz
704 007 717

Contact for journalists:
media@haejunior.cz

Media kit download
 

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