Rare Disease Day 2026 in HAE Junior
Rare Disease Day 2026 in HAE Junior
The project goal is to support HAE juniors in developing their potential despite the limitations associated with this rare condition.
We are delighted to present the 2026 awareness calendar themed "My Inspiration".
Patient advocacy in the Czech Republic was presented as a best practice example.
HAE patient to present to students of the 2nd Medical Faculty at Charles University
HAE Junior was proud to participate in the 14th C1-inhibitor Deficiency & Angioedema Workshop.
"My Inspiration" art exhibition at the 14th C1-Inhibitor Deficiency & Angioedema Workshop.
On Friday, 16th of May, we celebrate again the HAE Day.
You can send your financial donation also to our bank account 2001782429/2010.
National & international affiliations:
