8. 4. 2026
The Czech government adopts the National Strategy for Rare Diseases 2026–2035

The new Czech Strategy for Rare Diseases 2026-2035 has been adopted.

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7. 4. 2026
Stronger than HAE through sports: our 2026 motto

Highlighting the importance of sports in helping HAE juniors grow stronger.

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24. 2. 2026
Lectures, Art Exhibition Opening, and New Educational Materials For Rare Disease Day 2026

Rare Disease Day 2026 in HAE Junior

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12. 1. 2026
Inclusive scholarships project for HAE juniors continues in 2026

The project goal is to support HAE juniors in developing their potential despite the limitations associated with this rare condition.

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25. 11. 2025
HAE Junior has been helping the patient community for six years!

Sixth anniversary and wrap-up of the year 2025 at HAE Junior

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22. 10. 2025
HAE Junior brings inspiration for 2026!

We are delighted to present the 2026 awareness calendar themed "My Inspiration".

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16. 10. 2025
“Embracing Opportunities” at HAEi EMEA conference in Italy

Patient advocacy in the Czech Republic was presented as a best practice example.

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26. 9. 2025
Raising HAE awareness among Czech medical students 

HAE patient to present to students of the 2nd Medical Faculty at Charles University

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20. 8. 2025
Back to school: Recommendations and Scholarships from HAE Junior

Useful tips from HAE Junior ahead of the new school year

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9. 6. 2025
HAE Junior presented poster on pediatric patients’ needs

HAE Junior was proud to participate in the 14th C1-inhibitor Deficiency & Angioedema Workshop.

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Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

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