On Saturday, May 16th, we once again celebrate the HAE Day

The 6th HAE Junior family camp, under the theme “Stronger Than HAE Through Sports,” took place from May 1 to 3, 2026.

The new Czech Strategy for Rare Diseases 2026-2035 has been adopted.

Highlighting the importance of sports in helping HAE juniors grow stronger.

Rare Disease Day 2026 in HAE Junior

The project goal is to support HAE juniors in developing their potential despite the limitations associated with this rare condition.

Sixth anniversary and wrap-up of the year 2025 at HAE Junior

We are delighted to present the 2026 awareness calendar themed "My Inspiration".

Patient advocacy in the Czech Republic was presented as a best practice example.

HAE patient to present to students of the 2nd Medical Faculty at Charles University