As 2026 approaches, we are excited to present a new wall calendar featuring drawings and paintings by children living with the rare disease HAE, by their siblings, and friends from the Czech Republic, Ukraine, and Hungary. These artworks were part of the "My Inspiration" exhibition presented at the 14th C1-inhibitor Deficiency & Angioedema Workshop scientific conference in Budapest (May 29 - June 1, 2025). The exhibition was very well received by the attending scientists and doctors.

Similar to the art exhibition, this awareness-raising calendar pays tribute to all the brave, talented children and adolescents with HAE. Through the power of creativity, they expressed their own view of the world, highlighting the daily challenges and inspirations in their lives with HAE.

„Growing up with HAE remains a challenge, irrespective of the therapeutic innovations achieved so far. At HAE Junior, we believe it is important to raise awareness about the special situation of the youngest HAE patient community and their unmet needs. At the same time, we seek to proactively work with patient families so they can raise a generation of HAEroes – stronger than HAE.“ comments Camelia C. Isaic, HAE Junior Chairwoman.

Acknowledgements

In the coming weeks we intend to send out this calendar as a sign of gratitude to our members, partners, and supporters whose help enables us to carry out our various projects.

We are confident that the paintings and drawings by HAE Juniors will bring inspiration and motivation to everyone throughout 2026!