At the invitation of ČAVO (Rare Diseases Czech Republic), our organization is taking part in 'University lectures' educational project at the beginning of October. Through seminars and lectures, this project will introduce medical students from the 2nd Faculty of Medicine, Charles University in Prague, to the life experiences of patients with rare diseases. During the lecture, an HAE patient (and member of HAE Junior) will share her story describing both the disease and the challenges she faced due to the diagnosis. Such insight will give students a unique opportunity to learn about HAE from the patient's perspective and ask questions directly. At the same time, the future doctors can find out more about HAE Junior's awareness projects and activities.
Our patient organization regularly joins similar events dedicated to educating medical students. For example, last year we held a similar presentation at the 3rd Faculty of Medicine of Charles University in Prague, also at the invitation of ČAVO. We also displayed a drawing exhibition by children with HAE at the Faculty of Medicine of Masaryk University in Brno (2023) and the 2nd Faculty of Medicine of Charles University at Motol University Hospital (2022). In addition, we previously distributed by post the Czech version of the educational poster ‘Not all angioedema is caused by allergies’, published by HAEi, to all medical faculties in the Czech Republic.