In December, we mark six years since the establishment of our patient organization HAE Junior! On this anniversary, we look back at the past 12 months and recall last year's anniversary campaign for our "fifth birthday."

Brighten the pre-holiday season with the HAE Junior Advent calendar

It's been six years since HAE Junior started its mission to help Czech children and youth diagnosed with the rare disease Hereditary Angioedema (HAE). And because we celebrate our "birthday" in December, during the Advent and the Christmas season, we'd like to look back at our last year’s campaign that marked our fifth anniversary.

We invite you once again to visit our anniversary website, haejunior5.cz, where you can  read reports on our major projects, see photos summarizing HAE Junior's activities, milestones, and achievements.

Let’s recall some of the wishes you sent us during last year's campaign:

´I wish you strength and perseverance for your future work, which will greatly help to ensure that patients are diagnosed early, receive the appropriate targeted therapies and can live a life similar to that of their healthy peers. I wish you a Happy Birthday!´ (Henriette Farkas, Hungary) 

'I wish you many more amazing years. May the organization grow in membership so that even more patients and their families will be reached and helped.' (Maria, Netherlands)

´I wish for continued growth and expansion of HAE Junior's reach, ensuring that every young patient with Hereditary Angioedema (HAE) feels supported and empowered´ (Malena Vetterli, RIPAG Chair (ERN RITA))

‘I wish you continued strength and perseverance to further improve patient care.’ (Markus Magerl, Germany)

2025 was dedicated to patient awareness and international collaboration

Another year full of campaigns and activities aimed at improving the lives of HAE juniors is about to end. In addition to our traditional campaigns for Rare Disease Day (February), HAE Day (May), the #Active4HAE challenge (May), and Plasma Donation Awareness Week (October), we also took part in several prestigious international conferences. We presented a poster on the real needs of pediatric HAE patients and the HAE Junior art exhibition at the 14th C1-inhibitor Deficiency & Angioedema Workshop (May/June). In October, we attended the HAEi EMEA Regional Conference in Rome.

What to look forward to?

We are already preparing a schedule of activities and projects for 2026. The main event for our patient community will be the Family Educational Camp, taking place from May 1–3, 2026. Available spots are filling up fast, so be sure to register soon by filling out the application form (in Czech only). And if you still don't have our 2026 Awareness Calendar, "My Inspiration," let us know. We’ll gladly send it to you by post.

Wrapping up with an Advent wish

We wish all patient families, doctors, nurses, and HAE Junior partners a wonderful Advent season!