The umbrella organization HAE International organized a GLW conference in Denmark, which was also attended by our organization HAE Junior. At the same time, registration is now open for the new LEAP 2025 program, inviting young HAE patients and their relatives from all over the world. You can read more about this news in the following lines.
From 3 to 6 October, members of the HAE Junior community participated in the international Global Leadership Workshop (GLW) in Copenhagen, Denmark, whose main theme was "Navigating the Future". We especially liked the practical training sessions, workshops and lectures led by the HAEi team as well as world-leading HAE experts. It also included networking with patient organizations from all over the world, meeting with the conference partners or presenting the new HAEi LEAP 2025 challenge for young HAE patients.
Please, find more information about the conference here: https://glw.haei.org/glw
We look forward to the next edition of the conference!
Young HAE patients and/or their siblings can register for the international HAEi LEAP 2025 program on the official website until Sunday, November 10th, 2024. The program itself includes a three-day face-to-face meeting of participants in late April 2025, followed by an online learning session lasting until the end of July 2025. The students are going to sharpen useful skills such as conducting research, presenting a project and its results, creating web and social media content, public speaking, etc. – these skills are thematically focused on patient advocacy.
HAEi LEAP 2025 is open to HAE patients and their relatives aged between 16 and 25 years old who are members of a local patient organization and have a good command of English – the language in which the program is conducted. As part of the application process, applicants have to make a short presentation video (up to 60 seconds), write a brief letter explaining why they want to take part in the project and present an outline of the project aimed to support their local HAE community after completing the training. The delivery of the project will be financially supported by a one-time monetary grant.
For more information on the content and conditions of the HAEi LEAP 2025 program, including videos, please visit the official website at youngsters.haei.org/leap-application/.