The 11th European Conference on Rare Diseases & Orphan Products (ECRD 2022) represents the official event of the 2022 French Presidency of the Council of the European Union and it is scheduled to take place fully online from 27 June to 1 July 2022. According to Eurordis organizers, "the ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place."

This prestigious conference brings together patient advocates, researchers, healthcare professionals, policy makers and many more European stakeholders. In addition to preparing an extensive five-day program, the organizers also included an open call for ePoster applications on the topics of Good health & well-being, Reduced inequalities, Industry, innovation % infrastructure, Data/ digital, Rare disease patient group innovations.

At HAE Junior, we are proud that the proposed ePoster "HAE Junior: A patient organization with a holistic approach" has been approved as part of ECRD 2022 poster session. We are looking forward to a fruitful experience exchange in rare disease patient advocacy at this conference. And we remain determined to support the theme of rare diseases as a priority during the second half of 2022, when the Czech Republic will take over from France the EU Council Presidency mandate.