17. 10. 2022
HAE Patients in Ukraine Under War Conditions

What is it like to live with HAE in Ukraine during times of war?

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20. 6. 2022
"A message to the young with HAE? Do not give in to the disease!"

The first symptom occurred was when I was two years old – it was in 1977.

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5. 5. 2022
I finally broke free from the disease, which was burdening me

Finally I can live a normal, peaceful life.

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8. 3. 2022
ERN-RITA facilitates virtual medical consultations with European experts

Interview with Malena Vetterli, Board Member of ERN-RITA.

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24. 4. 2021
The Best Gift: Freedom

Regaining freedom.

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10. 1. 2021
Life with HAE through a mother's eyes

Supporting the development of my children's talents has returned the joy of life to our whole family - in spite of HAE diagnosis and other obstacles in life.

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22. 10. 2020
Chronic absentee with poor grades

Patient story illustrating the burden of HAE in relation to education.

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10. 7. 2020
My painful adolescence with HAE

A patient testimonial about the experience of living with HAE as a teenager.

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4. 5. 2020
The very first HAE symptom brought me to the operating table. Unnecessarily.

A patient story describing how the very first HAE symptom can lead to unnecessary surgery.

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14. 3. 2020
Face to Face Against HAE

Growing up with HAE as experienced by one of the HAE juniors.

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Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

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