Rare Disease Day 2023
HAE juniors artwork raising awareness among Czech and European lawmakers.
Virtual workshop on 5.10.2022
ECRD 2022 conference to take place online from 27 June to 1 July 2022.
"Stronger than HAE" art exhibition as part of the Rare Disease Day 2022 campaign.
HAE Junior joins Giving Tuesday, which this year falls on November 30th, 2021.
Access to preventive treatment and education of patient families are the main patient priorities.
You can send your financial donation also to our bank account 2001782429/2010.
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