14. 9. 2022
Workshop "Achieving a better quality of life for people with rare diseases"

Virtual workshop on 5.10.2022

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12. 8. 2022
HAE Junior educational family camp 2022 was a great success!

Educational family camp 2022

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20. 6. 2022
HAE Junior to participate in ECRD 2022 poster session

ECRD 2022 conference to take place online from 27 June to 1 July 2022.

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7. 2. 2022
"Stronger than HAE" art exhibition aims to raise rare disease awareness

"Stronger than HAE" art exhibition as part of the Rare Disease Day 2022 campaign.

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19. 1. 2022
Stronger than HAE – our mission continues in 2022

HAE Junior in 2022

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31. 10. 2021
Stronger than HAE: Celebrate with HAE Junior Giving Tuesday 2021!

HAE Junior joins Giving Tuesday, which this year falls on November 30th, 2021.

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30. 10. 2021
"Living with HAE during the COVID-19 pandemic" patient survey results

Access to preventive treatment and education of patient families are the main patient priorities.

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13. 10. 2021
Czechia now has its own "orphan drugs" bill

The new legislation is valid as of January 2022.

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17. 9. 2021
Preparing for the new school year according to HAE Junior

Back to school can be a challenging time for some HAE juniors and their parents.

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24. 8. 2021
Memsource supports HAE Junior's international activities

HAE Junior welcomes Memsource as a new partner.

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Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

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