• Patient organisation dedicated to improving the quality of life of children & young people with hereditary angioedema (HAE)

News

12. 1. 2026
Inclusive scholarships project for HAE juniors continues in 2026

The project goal is to support HAE juniors in developing their potential despite the limitations associated with this rare condition.

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25. 11. 2025
HAE Junior has been helping the patient community for six years!

Sixth anniversary and wrap-up of the year 2025 at HAE Junior

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Stories and interviews

23. 10. 2025
"For the first time without injections: an experience that changed my life"

My experience taking part in a clinical trial.

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25. 8. 2025
"Together we can ensure that patient needs are acknowledged and taken into account"

Interview with Camelia Isaic about the activities of the Plasma Protein Users Working Group (PUPP)

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Events

Art exhibition opening and lecture session in Hradec Králové

When: 2 p.m., February 9, 2026

Where: Educational Center of the Faculty of Medicine, Hradec Králové University Hospital

More info
Educational family camp 2026

Date: 1. – 3. 5. 2026
Location: Penzion Medličky, Vysočina

More info

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

Contact us

Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

TakedaKalvistaLekarna.cz
Phrase
ČEZ
AmgenAstria

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
napoNárodní zdravotnický informační portálERN RITA
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