When: 1st April 2025 – 31st May 2025

HAE Junior patient organization invites all members, health professionals, partners and supporters to join the #active4HAE challenge, organized by the umbrella organisation HAE International, as part of the global awareness campaign for the annual HAE Day, taking place on 16 May. Last year, the Czech Republic collected almost 7 million steps, ranking 10th in the global chart! We hope that this year you’ll help us reach the top ranks in the HAE awareness competition again.

Do you like playing sports, going for walks or just relaxing with a book? You can now help HAE patients in raising disease awareness simply by doing these or other activities. You can regularly log your activity on www.haeday.org between 1st April and 31st May 2025. Step by step, we seek to raise awareness of the rare disease HAE in the Czech Republic and worldwide.

Purple has become the official color of this HAE awareness campaign

A new twist to the #Active4HAE challenge is the color purple, which is the official color of the HAE Day and Rare Disease Day campaigns. For this reason, HAE International is encouraging participants to incorporate this color into their sporting or leisure activities, for example by choosing clothing, sports equipment, bookmarks or other items in purple. We would love it if you capture your activities in photos and share them on social media with the hashtag #active4HAE.

On behalf of HAE Junior, we would be very grateful if you mention your support for our patient organization and tag the HAE Junior profile in your Facebook, Instagram or LinkedIn posts 🙂

Our social media platforms:

Facebook: https://www.facebook.com/HAEJuniorCR/

LinkedIn: https://www.linkedin.com/company/haejunior

Instagram: https://www.instagram.com/haejunior.cz/

tHAEnk you!