Projects

15. 4. 2024
The HAE educational camp, under the auspices of the Czech First Lady, highlighted the importance of siblings

The 2024 HAE Junior camp with the theme ‘Our Super Siblings’ took place between 12th - 14th of April in Prague.

Read more
21. 3. 2024
#active4HAE challenge

1st April 2024 – 31st May 2024

Read more
22. 1. 2024
Everything you need to know about HAE in one practical online guidebook

The newly translated guidebook helps the patients to get familiar with HAE.

Read more
7. 11. 2023
HAE Junior presents 2024 awareness calendar!

Calendar with drawings made by Czech HAE children

Read more
18. 10. 2023
Autumn Virtual Patient Meeting

When: 21.11.2023 @ 17:30
Where: online

Read more
11. 10. 2023
HAEi LEAP 2024 is opening registrations 

Registrations are open until Sunday 12th November 2023

Read more
2. 8. 2023
HAEi Regional Conference EMEA

Dates: 1–3 September 2023

Read more
31. 7. 2023
HAE juniors' families joined the fourth educational summer camp

Educational summer camp 2023

Read more
11. 5. 2023
New poster aims to improve the quality of emergency care for Czech HAE patients

Raising disease awareness on HAE Day 2023

Read more
6. 10. 2022
HAE juniors raising  awareness among Czech & EU lawmakers

HAE juniors artwork raising awareness among Czech and European lawmakers.

Read more

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

Contact us

Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

PharmingTakedaKalvistaLekarna.cz
Phrase
ČEZ

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
napoNárodní zdravotnický informační portálERN RITA
Adalo Solutions s.r.o. © 2020 - 2024 | All rights reserved
Donate
here >>
Donate here >>