Projects

14. 9. 2022
Workshop "Achieving a better quality of life for people with rare diseases"

Virtual workshop on 5.10.2022

Read more
12. 8. 2022
HAE Junior educational family camp 2022 was a great success!

Educational family camp 2022

Read more
7. 2. 2022
"Stronger than HAE" art exhibition aims to raise rare disease awareness

"Stronger than HAE" art exhibition as part of the Rare Disease Day 2022 campaign.

Read more
31. 10. 2021
Stronger than HAE: Celebrate with HAE Junior Giving Tuesday 2021!

HAE Junior joins Giving Tuesday, which this year falls on November 30th, 2021.

Read more
30. 10. 2021
"Living with HAE during the COVID-19 pandemic" patient survey results

Access to preventive treatment and education of patient families are the main patient priorities.

Read more
6. 8. 2021
HAE Junior awarded the HAEro Games 2021 trophies!

HAE Junior held the second edition of HAEro Games in August 2021.

Read more
30. 6. 2021
New partnership with Počítače dětem to support HAE juniors

Education of HAE children is one of our priorities.

Read more
24. 6. 2021
First-aid thermosets

HAE Junior distributes first-aid thermosets.

Read more
16. 5. 2021
"We have big dreams for HAE juniors" exhibition

HAE Junior drawing exhibition.

Read more
24. 3. 2021
Informational leaflets for practical situations

Informational leaflets for HAE patients & their families.

Read more

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

Contact us

Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

PharmingTakedaKalvistaLekarna.cz
Phrase
ČEZ

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
napoNárodní zdravotnický informační portálERN RITA
Adalo Solutions s.r.o. © 2020 - 2024 | All rights reserved
Donate
here >>
Donate here >>