Webinar ERN RITA

15. 4. 2024

Invitation to the ERN RITA webinar ‘Transitioning from childhood to adulthood: RITA Recommendations for Primary Immunodeficiencies and Autoinflammatory Diseases’

Date: Wednesday 17 April 2024, 18:00–19:00 CET

We invite our members and other interested individuals to a webinar on 17 April, hosted by the ERN RITA – European Reference Network (ERN-RITA) for Rare Immunodeficiencies, Autoinflammatory and Autoimmune Diseases. The webinar focuses on the transition care and unique needs and challenges of patients with rare immunodeficiency disorders or autoinflammatory diseases as well as their caregivers.

Dr. Pere Soler-Palacín (Vall d'Hebron University Hospital, Barcelona) and Dr. Mojca Zajc Avramovič (Ljubljana University Medical Centre) will share their recommendations based on their know-how and many years of experience. In addition, RITA patient representatives and advocates, Michael Poelzl (Rheumalis, Austria) and Camelia Isaic (HAE Junior, Czech Republic), will add valuable experience and patient perspectives.

You are welcome to send questions on the topic prior to the event to: ern-rita@umcutrecht.nl. The webinar will be held in English.

Registration link: https://register.gotowebinar.com/#register/7553816845058000215

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

Contact us

Will you support us?

Support us - HAE Junior cz

You can send your financial donation also to our bank account 2001782429/2010.

Partners:

PharmingTakedaKalvistaLekarna.cz
Phrase
ČEZ

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
napoNárodní zdravotnický informační portálERN RITA
Adalo Solutions s.r.o. © 2020 - 2024 | All rights reserved
Donate
here >>
Donate here >>