Rare Disease Day 2025

18. 12. 2024

On 28th February 2025, the world will once again turn its attention to the lives of the 300 million people living with rare diseases as part of the annual Rare Disease Day campaign. And once again, our patient organization HAE Junior will be raising awareness on our social media. 

Follow us on Facebook, Instagram and LinkedIn for more updates and get involved by sharing our posts with the hashtag #RareDiseaseDay during February 2025.

Official website: www.rarediseaseday.org (videos, patient stories, events, etc.)

Official campaign video: https://www.youtube.com/watch?v=fIvqxQPjisI&t=52s&ab_channel=RareDiseaseDay

ČAVO website with more information: https://vzacna-onemocneni.cz/

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

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You can send your financial donation also to our bank account 2001782429/2010.

Partners:

PharmingTakedaKalvistaLekarna.cz
Phrase
ČEZAmberplasma

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
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