In a new interview with Camelia Isaic, HAE Junior chairwoman, you can read about the activities and plans of the Plasma Protein Users Working Group (PUPP), which is part of the Rare Diseases Czech Republic association. PUPP works to improve access to plasma-derived medicines for patients in the Czech Republic with various types of diseases. These medicines are also essential for HAE patients. We would like to remind HAE patients/caregivers, who are interested in participating, that they can join our working group by filling in the registration form.

Link to the interview on plazmaticke-proteiny.cz (Czech language only):

https://www.plazmaticke-proteiny.cz/spolecne-muzeme-zajistit-ze-o-pacientskych-potrebach-bude-slyset-a-ze-budou-brany-v-potaz