19. 9. 2024
“The hurdles for patients who want to join a clinical trial in another country are huge”

Interview with Dr. Ingrid Klingmann on the EU Cross-border Clinical Trials Initiative (EU-X-CT).

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11. 6. 2024
"My HAE diagnosis uncovered the same rare disease in the whole male line of our family."

On HAE Day 2024, the Czech media published another HAE patient story

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28. 2. 2024
Finding the bright side of bad things that impact us

It wasn't until I moved to the Czech Republic that my life changed for the better.

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6. 12. 2023
HAE Junior patient organization celebrates its 4th anniversary

Interview with Camelia Isaic on the occasion of the fourth anniversary of the organization

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18. 9. 2023
About 40% of blood plasma used to make plasma-derived medicines for European patients is given by US donors

Interview about the importance and future of plasma derived medicines in the EU

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6. 6. 2023
What to do if you are not diagnosed yet, but have symptoms that could possibly be due to HAE?

Interview with doc. Pavlína Králíčková, Ph.D. from University Hospital Hradec Králové.

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28. 3. 2023
The future of HAE patients is bright

Interview with Michal Rutkowski, HAEi Regional Patient Advocate

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27. 2. 2023
Patients’ voice is heard also thanks to HAE Junior

Intreview with Ms. Kateřina Slabá, head of the Promotion of Patients´ Rights Unit of the Ministry of Health

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9. 12. 2022
Patient organizations are the "voice of patients"

Interview with Tímea Piskáčková, NAPO Executive Director.

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2. 11. 2022
Many positive developments took place in the area of HAE during the last decade

Interview with Tomáš Freiberger Ph.D., Lead Physician of the Genetic Laboratory, CKTCH, Brno

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Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

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