Rare Disease Day 2024

5. 12. 2023

On 29th February 2024, the world will once again honour the lives of 300 million people with a rare disease as part of the Rare Disease Day global movement. Our patient organization HAE Junior is going to join this global initiative and seek to raise awareness about hereditary angioedema (HAE).

Follow our social media and website for more updates and get involved by sharing our posts with the hashtag #RareDiseaseDay during February 2024.

Official website: www.rarediseaseday.org

Official campaign video available HERE.

Contact:

HAE Junior non-profit organisation
Wichterlova 2372/8, 
Prague 8, 182 00
Organisation ID 08749787

info (at) haejunior.cz

Contact for journalists:
media@haejunior.cz

Media kit download
 

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You can send your financial donation also to our bank account 2001782429/2010.

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PharmingTakedaKalvistaLekarna.cz
Phrase
ČEZAmberplasma

National & international affiliations:

Logo EurodisČeská asociace pro vzácná onemocněníPacientský hubAIP
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