When: 12th – 14th April 2024

Where: Hotel Globus, Gregorova 2115/10, Prague 4

The fifth edition of the annual gathering of our patient community will take place on a new date, in a new location and also under the official patronage of Eva Pavlová, the First Lady of the Czech Republic! This change is meant to allow both international guests and member families who normally couldn’t join us in the summer (e.g. due to vacations) to participate in person. The theme for the 2024 stay is "Our Super Siblings" as this time we will focus on relationships between siblings, their roles and importance for children/youth with HAE.

We are currently full and only accepting applications for substitutes. The registration form is available HERE.

As every year, we will prepare a rich programme of workshops as well as educational, sporting and fun activities. There will be a general meeting of our organisation as well as the 5th edition of the popular HAEro Games – this year with a brand new creative workshop with 3D. Additionally, we are looking forward to interesting guests from the Czech Republic and abroad – HAE specialists, physicians, representatives of patient organizations, etc. Among those who have confirmed their in-person or virtual attendance are: immunologist Jakub Abramson from the Weizmann Institute of Science, Michal Rutkowski, vice-chairman of HAEi, Marta Sobotková, HAE physician and Věra Reichlová, psychologist, both from the Motol University Hospital.

If you haven’t been to our Educational camp yet and would like to learn more about it, check out our report on the 2023 edition.

Project partners: Amberplasma, CSL Behring, KalVista, Foundation ČEZ, Pharming, Pharvaris, Swixx BioPharma, Sdružení pro Plazmaferézu, Takeda.